Resources

     
 

AARP. www.aarp.org/health
Founded in 1958, the AARP is a nonprofit, nonpartisan membership organization that helps people 50 and over improve the quality of their lives. Also available as www.aarp.org/espanol

APHA. Aging and Public Health Section of the American Public Health Association. http://www.apha.org/membergroups/sections/aphasections/a_ph/ The mission of the Aging and Public Health Section is to promote the health and well-being of individuals as they age by improving their health, functioning, quality of life, and financial security. Aging and Public Health Section Newsletter. http://www.apha.org/membergroups/newsletters/sectionnewsletters/aph/winter11/ Features timely updates on aging and end of life issues.

AIDS Community Research Initiative of America (ACRIA). www.acria.org
Founded in 1991, ACRIA brings an activist approach to the study for new treatment for HIV and AIDS. A treatment education component was added in 1997.

Alzheimer's Association,
Hudson Valley/Rockland/Westchester, NY Chapter.
www.alz.org
Its mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. For information in Spanish go to www.alz.org/espanol

American Bar Association Commission on Law and Aging. www.abanet.org/aging The mission of the ABA Commission on Law and Aging is to strengthen and secure the legal rights, dignity, autonomy, quality of life, and quality of care of elders. It carries out this mission through research, policy development, technical assistance, advocacy, education, and training.

American Cancer Society. www.cancer.org
ACS provides information and a Cancer Survivors Network. There is information in Español and Asian and Pacific Islanders materials.

American Diabetes Association. http://www.diabetes.org
For all people with, or at risk for, diabetes. The website provides Información en Español.

American Parkinson Disease Association. www.apdaparkinson.org
Headquartered in New York the organization focuses on research, patient support, education and raising awareness about the disease.

Being. http://being.publicradio.org
Being is a spacious conversation, an evolving media space about the big questions at the center of human life, from the boldest new science of the human brain to the most ancient traditions of the human spirit. Hosted by Krista Tippett and formerly called Speaking of Faith.

Cancer Support Team. www.cancersupportteam.org
A unique, non-profit home care organization that provides professional nursing, social work, and other supportive services, free of charge, to cancer patients and their families living in lower Westchester County, New York. Materials available en Español

Center to Advance Palliative Care (CAPC). www.capc.org
Diane E. Meier, MD is Director of the Center to Advance Palliative Care, a national organization devoted to increasing the number and quality of palliative care programs in the U.S. The Mount Sinai School of Medicine, NY, provides direction and technical assistance.

Center for Practical Bioethics. www.practicalbioethics.org
The Center helps patients and their families, healthcare professionals, policymakers and corporate leaders grapple with ethically complex issues in medicine and research.

Center for Spirituality, Theology and Health. www.spiritualityandhealth.duke.edu Based in the Center for Aging at Duke University Medical Center it focuses on conducting research, training others to do so, and supporting dialogue and discussion on spirituality, religion, and health as related to public health and clinical practice.

The Cochrane Collaboration. www.cochrane.org
The Cochrane Collaboration is an international, independent, not-for-profit organization of over 28,000 contributors from more than 100 countries, dedicated to making up-to-date, accurate information about the effects of health care readily available worldwide. Their online database is regularly updated.

Collaborative for Palliative Care/Westchester & NYS Southern Region. www.cpcwestchester.org
The CPC is a broad-based collaborative of community organizations and volunteers dedicated to improving care of the seriously ill through creating, supporting and mobilizing education, research and advocacy for compassionate palliative and end-of-life care and enriching the quality of life for people facing chronic and life-limiting illnesses.

Compassion and Choices. www.compassionandchoices.org
An organization that supports, educates and advocates for choice and care at the end-of-life.

Compassion and Support. www.compassionandsupport.org
This is the information site for MOLST—Medical Orders for Life Sustaining Treatment. It includes videos and contact information. The web site stresses the importance of planning ahead, knowing your choices, making sound decisions and sharing your wishes with your loved ones and health care professionals.

DrugWatch. DrugWatch.com
An awareness group that aims to educate the public about prescription drugs, over-the-counter medications, and medical devices that have the potential to cause patients serious harm. Their seniors page has pertinent medication and medical device information for the elderly.
http://www.drugwatch.com/seniors/ Health Information for Seniors
http://www.drugwatch.com/stryker/lawsuit-hip-replacement/
Defective Hip Implant Information
http://www.drugwatch.com/2013/11/20/cholesterol-heart-guidelines-statins/ Cholesterol Guidelines and Medication Article

Dying Well. www.dyingwell.com
Ira Byock, MD's provides resources for people facing life-limiting illness, their families and their professional caregivers.

EPERC. www.eperc.mcw.edu
The purpose the End of Life/Palliative Resource Center is to share educational resource material among the community of health professional educators involved in palliative care education.

Gilda's Club Westchester. www.gildasclubwestchester.org
Creates welcoming communities of free support for everyone living with cancer, men, women, teens and children, along with their families and friends.

Growth House, Inc. www.growthhouse.org
Growth House, Inc., provides free access to over 4,000 pages of high-quality education materials about end-of-life care, palliative medicine, and hospice care, including the full text of several books.

Hastings Center. www.thehastingscenter.org
The Hastings Center is an independent, nonpartisan, and nonprofit bioethics research institute founded in 1969. The Center's mission is "to address fundamental ethical issues in the areas of health, medicine, and the environment as they affect individuals, communities, and societies."

HealthCare Chaplaincy. www.healthcarechaplaincy.org
HealthCare Chaplaincy's expertise in professional multi- faith spiritual care is transforming how health care is understood and delivered through research, education, monthly and quarterly newsletters, clinical practice, advocacy, and innovation. They do most of the Hospital Chaplaincy work in the New York City area.

Hearthstone Alzheimer Care. www.thehearth.org
Creates environments where people with Alzheimer's Disease can live and flourish. Located in Westchester, Rockland and Boston. The Hearthstone Institute offers courses and training.

Hospice Foundation of America. www.hospicefoundation.org
Helps those who cope personally or professionally with terminal illness, death, and the process of grief and bereavement. It is a Source for the Living With Grief series, which is available in a variety of formats.

Hospice and Palliative Care Association of New York State. www.hpcanys.org
The Association promotes the availability and accessibility of quality hospice and palliative care for all persons in New York State confronted with life-limiting illness.

Huntington's Disease Society of America. www.hdsa.org
A national, non-profit voluntary health agency dedicated to finding a cure for Huntington's Disease that provides vital support, information and educational services to improve the lives of those affected by HD.

MAC Angels. www.macangels.org/
The MAC Angels Foundation is dedicated to supporting families with Amyotrophic Lateral Sclerosis (ALS).

Medicare Rights Center. www.medicarerights.org
The Medicare Rights Center is a national, nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities through counseling and advocacy, educational programs and public policy initiatives. You may also wish link to the Center's free, comprehensive resource, Medicare Interactive. This unique, state-specific Medicare reference guide features hundreds of answers to real Medicare questions, as well as case examples and links to local resources. That URL is www.medicareinteractive.org

The Mesothelima Group. www.mesothelimagroup.com
The Mesothelima Group provides education, support sevices and financial help for cancer patients and their families.

Michael J. Fox Foundation for Parkinson Research. www.MichaelJFox.org
Funds research that can lead to the creation of better Parkinson's treatments.

National Alliance for Caregiving. www.caregiving.org
Founded in 1996, NAC is a non-profit coalition of national organizations focusing on issues of family caregiving.

National Center of Complementary and Alternative Medicine. www.nccam.nih.gov Federal Government's lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine. Información de Salud en Español.

National Center for Ethics in Health Care. www.ethics.va.gov
Integrated Ethics provides proven solutions to the many challenges facing ethics programs in health care organizations today. The Ethics Center makes tools and materials available to ethics program health care professionals via this web site at no cost.

National Hospice and Palliative Care Organization. www.nhpco.org
Advancing care at the end-of-life. Información En Español.

National Multiple Sclerosis Society. www.nationalMSsociety.org
The Society mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by Multiple Sclerosis.

National Palliative Care Research Center. www.npcrc.org
The mission of NPCRC is to improve care for patients with serious illness and the needs of their families by promoting palliative care research. Partners with Center to Advance Palliative Care www.capc.org to translate their findings into clinical practice.

National Parkinson's Foundation. www.parkinson.org
The Foundation's mission is to improve the quality of care for people with Parkinson's disease through research, education and outreach.

New York Academy of Medicine. www.nyam.org
The New York Academy of Medicine advances the health of people in cities. An independent organization NYAM addresses the health challenges facing the world's urban populations through interdisciplinary approaches to policy leadership, education, community engagement and innovative research.

New York University Langone Medical Center Medical Humanities. http://medhum.med.nyu.edu/blog/
The blog is a forum for scholarly discussion of ongoing projects in medical, nursing, premedical, graduate, and postgraduate education and research that use the humanities, social sciences, and the arts to address current issues in medicine and bioscience from a variety of perspectives

New York State Government. www.state.ny.us
Portal to all government information, departments, NYS Assembly and NYS Senate etc. etc. Many materials available en Español.

New York Times Well. http://well.blogs.nytimes.com/
Tara Parker-Pope, NY Times Well columnist and blogger on the latest medical research and societal trends on health. Links to current articles, websites, and blogs, and archived articles. Pick your disease, enter and follow the links

New York Times Dana Jennings. http://well.blogs.nytimes.com/tag/Jennings/
Dana Jennings, journal and editor at The Times writes about his journey with Prostate Cancer.

Next Step in Care. www.nextstepincare.org
New York Hospital Fund created Next Step in Care in cooperation with health care providers, including hospitals, nursing homes, home care agencies and family caregivers.

Obit Magazine. www.obit-mag.com
Obit magazine is an eclectic mix of ideas, essays, cartoons, profiles and opinions about life, death, and transitions. Links to obits, books, blogs, science, forums etc.

Office of Inspector General Report on Hospice Utilization in Nursing Facilities
Click to View PDF File

On Our Own Terms: Moyers on Dying. http://www.pbs.org/wnet/onourownterms
The web site includes resources and an Inter-Institutional Collaborating Network (IICN) that joins major end-of-life care organizations from the United States.

Pace Women's Justice Center. www.law.pace.edu/wjc
Source for the Westchester Elder Law Q & A: Answers to Questions About Estate and Financial Planning, Health Care Planning and Elder Abuse, third edition, written by Steven A. Schurkman, Esq., of Keane & Beane, P.C. The Q & A is available en Español.

Pallimed. www.pallimed.org
Drew Rosielle, MD reviews current palliative medicine, hospice and end-of-life research.

Partners Against Pain. www.partnersagainstpain.org
Partners Against Pain® is a resource that serves patients, caregivers, and healthcare professionals to help alleviate unnecessary suffering by advancing standards of pain care through education and advocacy.

Pioneer Network. www.pioneernetwork.net
Since 1997, the Pioneer Network has been dedicated to creating culture change in all settings where aging and supportive services are delivered. It is committed to establishing the kind of care that each of us wants for our loved ones and ourselves.

Pitney Bowes Caregiving Program. http://news.pb.com
The Pitney Bowes Caregiving Program stresses the importance of providing transparency and support to caregivers within an organization. The Caregiving Quandary White Paper available for download.

Reclaiming the End-of-Life. www.ReclaimtheEnd.org
A nonprofit, nonpartisan, New Hampshire-based project designed to make bold changes in the way we care for frail elderly, seriously ill persons of any age, and family caregivers. Ira Byock, MD is the cofounder of the website.

Robert Wood Johnson. www.rwjf.org
RWJ efforts focus on improving both the health of everyone in America, and their health care, how it's delivered, how it's paid for, and how well it does for patients and their families.

StopPain.org. www.stoppain.org
Beth Israel Medical Center Department of Pain and Palliative Medicine. The Center offers a broad array of therapies for chronic pain of all types.

United Hospital Fund. www.uhfnyc.org
The Fund advances policies and support programs that promote high-quality, patient-centered health care services in New York that are accessible to all.

United States Department of Health and Human Services. Health Resources and Services Administration.
www.hrsa.gov/culturalcompetence/measures
A project to develop a cultural competence measurement profile comprising a conceptual measurement framework and set of measures for gauging cultural competence in health care settings.

United States National Library of Medicine. National Instititutes of Health. www.nlm.nih.gov/
This largest medical library in the world has a vast amount of information on palliative care and end-of-life in English and Spanish.

Westchester Alliance. www.westchesterpartnership.org
The focal point for the Alliance is to encourage and foster greater infusion and integration of aging related content into curricula and to play a major role in helping young people plan their life's work fully aware of the vast opportunities in aging.
Westchester County Department of Senior Programs and Services (DSPS). www.westchestergov.com/seniors The Department of Senior Programs and Services (Area Agency on Aging) offers a variety of services, seminars and activities for seniors and caregivers throughout the year. Links to information about the Livable Communities Approach, the Caregiving Coaching Program and a myriad of other services. Information available en Español.

Westchester County Government. www.westchestergov.com
For all things Westchester use this website.

Westchester County Office for Women. www.westchestergov.com/women
The office provides online support and information for Sandwich Generation Caregivers-women caught between kids, careers, and elderly in Westchester County.

Westchester Public/Private Partnership for Aging Services. www.westchesterpartnership.org
The WPPP develops resources to provide myriad services that help seniors age with independence and dignity in their home community. It also helps caregivers assist their family members and successfully meet their work and other family responsibilities.

YouTube. www.youtube.com
A video-sharing website where users can upload, share and view videos. It was awarded a 2008 George Foster Peabody Award and cited for being "a 'Speakers' Corner' that both embodies and promotes democracy. Among the huge variety of videos many relate to healthcare and life-limiting illnesses.


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